I understand that Facebook isn't the be-all and end-all of life. But when
your child has a rare disorder, when there's only three others like him in
the whole state, it's a good thing to connect with other parents, because
globally, at least we number into the 100's.And frankly, when
your child dies, as much as they want to, family and friends just can't
"get it." And grieving parents scare other parents. Intellectually, we
know that it's not contagious. But emotions often aren't clear
thinking. When someone else is walking that path, they can offer support that is
priceless.We NEED the global support that is found in social
networking. It saves sanity, and frankly saves lives. With rare disorders, even
the doctors are often stumped. Funny, mine often ask what my other mom-friends
have suggested when we're making a medical plan of action. There is a place for Facebook and other social networking sights. And
I'm very grateful for them.
This is an outrageous substitute for real grieving and comforting. As usual,
Facebook is a pernicious evil which displaces reality. Parents who
grieve should be comforted face to face, not over some social networking site.
Is the general public now so lazy that it cannot be bothered to comfort those
who grieve in person? Online messages pig condolence are worthless substitutes
for real carrying. Facebook is destroying the public's ability
to engage in real conversation. It should be as the tool of societal
destruction that it is!