Fibromyalgia is topic of conference today

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  • anonymous
    Nov. 18, 2008 8:08 a.m.

    Fibromalgia is real. The pain we feel is very real, it is not in our heads, we live this pain every day in our bodies and also feeling the tiredness that goes along with it. Thank God for our doctors and rheumatoid specialists and other specialists know that we suffer as we do.

  • Rodger Murphree D.C., C.N.S.
    Sept. 13, 2008 2:55 p.m.

    I'm still dumbfounded when I read such comments from any "specialist." Comments like this are backward, cruel attempts to justify the long past myth that those with fibromyalgia are either lazy, crazy or just depressed. I've spent the last 14 years specializing in treating,, writing and speaking about fibromyalgia- let me tell you these folks have a real illness! I wish people who doubt fibromyalgia exists could come spend a day with me in my clinic in Birmingham AL and see just how real this illness is.
    Rodger Murphree, D.C., C.N.S.
    Author of Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome

  • CFS Facts
    Sept. 13, 2008 3:26 a.m.

    There are over 5000 international research studies demonstrating objective physical abnormalities in CFS, and a similar number of studies proving fibromyalgia exists.

    These are not diseases limited to depressed middle-aged women: they affect men, women and children. I've been told I'll be permanently disabled because my doctor didn't know that and his recommendations made my condition significantly worse because he didn't address the real problem, even after I got a clean bill of psychiatric health. Hardly "first, do no harm"!

    I've had blood tests described to me as "off the charts"; hardly a mere figment of my overactive imagination. A doctor documented a 101 fever every month for 6 months; again, objective evidence that I'm neither lazy nor crazy, but seriously physically ill.

    I was not unhappy until I was told that I would never return to the career I loved. And then I was furious that my life was ruined by someone else's ignorance and intransigence; depression never entered into it.

    N.B.
    It is not the patients who are disturbed, it is the physicians who are psychologically disturbed because they ignore the data. -- Muhammed B. Yunus, M.D.

  • Anonymous
    Sept. 12, 2008 11:52 p.m.

    Medical Specialist #2 your comments have given me a lot to think about? I can't help but wonder if you have any idea how your comments make people feel? I doubt it. My girlfriend read your piece and I just spent an hour with her. She's checked herself into a psych. unit. How dare you pretend that you know more than Dr. Lucinda Bateman. I suppose AIDS isn't real either and that the medical community is just out to make a quick buck? It is uneducated people like you who truly scare me. If you had a clue of what it's like to live with fibromyalgia you'd eat your own words. Maybe "karma" will catch up with you - and Medical Specialist #1.

  • Sadie
    Sept. 12, 2008 9:31 p.m.

    Well "Utah Medical Specialist #2" I don't know what your credentials are but I'm sure if you are a specialist you must know a lot. I guess you're right - I'm psychotic. You have helped me make a life changing decision tonight, just hope I can carry it out. I won't be here for the next time you write. Thank you for helping me see how stupid I've been - believing in doctors who just want my money, being fleeced for every last penny. I had no idea that was going on. I thought my doctor's worked as a team and checked me for everything. Sounds like you know your stuff. I'd rather be gone from this place than be diagnosed psychotic. God bless you for helping this poor middle aged woman. Now I know what to do to get some real attention.

  • fed up
    Sept. 12, 2008 7:54 p.m.

    Thank you Lucinda Bateman for the information you posted. It's unbelievable that some "medical specialist" thinks he knows more. I admit I'm an unhappy, middle aged female. You would understand why I am Mr. Medical Specialist if you had to walk in my shoes 24/7 for a week. I can quarantee that after a month your story would be much different. I hate jerks like you who think they know it all when in fact they know NOTHING.

  • gail
    Sept. 12, 2008 7:14 p.m.

    Fibromyalgia has been proven in brainscans!
    I am not starving for attention, I feel real pain!

  • To medical specialist
    Sept. 12, 2008 4:03 p.m.

    Maybe you're not as current as you'd like to think. Because the "information" you're spreading has been debunked. The CDC, WHO and other respected medical sources, including the AMA, concede the condition is real. I've never met you. Maybe you're not "real."
    Hmmmmmm

  • Hmmm
    Sept. 12, 2008 12:53 p.m.

    I am treated for fibromyalgia by a well known and respected rheumatologist who isn't "out to make a buck" as you put it. He respects my desire to find alternative ways to help myself: extra rest, careful exercise, mild pain medication, etc. Once all the other diseases were ruled out and it was determined I had FM he worked diligently with me to find what treatment worked best for me. If anyone is making money off my FM it's my massage therapist!!

  • fredricktoo
    Sept. 12, 2008 11:59 a.m.

    call any rheumatologist and ask him if there is no such thing as fibromyalgia.

  • Medical Specialist #2
    Sept. 12, 2008 10:51 a.m.

    Most of these patients are unhappy middle aged women starving for attention! Any HONEST medical professional that does not stand to make a buck from these patients will tell you the same thing.

    It is the so called "fibromyalgia clinics" and chiropractors that pray on these individuals and fleece them out of every last penny. When a legitimate medical condition is misdiagnosed and pigeon-holed fibromialgia, it's often to the patient detriment. When the correct diagnosis is made it is often too late.

    Many so called studies supporting fibromalgia were NOT peer reviewed and were supported by and/or sponsored by those that stand to gain from this contrived research.

  • To: Utah Medical Specialist
    Sept. 12, 2008 9:45 a.m.

    You are a crock! The AMA has recognized that Fibromyalgia and Chronic Fatigue are real health conditions. It's people like you who prolong the suffering of people like me!

  • Lucinda Bateman
    Sept. 12, 2008 9:24 a.m.

    If a chronically ill patient has a psychotic disorder or a medical condition that presents with pain and fatigue similar that described by CFS or FM, it is the responsibility of the medical team to diagnose and treat it! The CFS Case Definition and the FM criteria require and assume that a careful, thorough workup has been done to exclude, or identify and treat all other conditions. Two very good population based studies have been done by the CDC to determine the prevalence of CFS that included both an outpatient evalution and a 3 day inpatient evaluation by qualified medical and mental health professionals. What they found predicted 4 million with CFS and another 4 million who actually had a treatable diagnosis. A blanket statement that everyone diagnosed with FMS or CFS actually have a missed diagnosis or a psychotic disorder suggests that the writer is not familiar with the scientific medical literature. There have been more than 900 peer reviewed publications on CFS and FMS in the last 18 months alone.

  • Utah Medical Specialist
    Sept. 12, 2008 7:45 a.m.

    THERE IS NO SUCH THING!

    Too often this is a catch-all term for a missed diagnosis OR more often, a psychotic disorder.