Utah researchers use Utah, N.Y. families to track hereditary risk
The fact is EVERYONE over the age of forty should be screened for colon cancer,
just ask Katie Couric. If your family has a history of colon cancer (multiple
generations dying from it) than shame on you for not checking it out yourself
and blaming others for not informing you more. The whole reason the article was
written was to raise awareness.... I think it did that. Now it's YOUR turn to
be proactive... if you have cause for concern ACT ON IT, don't whine about it
and do nothing. Lynn, WHAT "right to know" do you have? Seriously... that is
rediculous! IF you have colon cancer in your family... you know, losing
countless loves ones to it gives YOU the right to know. Undergoing invasive,
painful, debilitating surgery gives YOU "the right to know". Being curious,
having a little temper tantrum because someone isn't telling you something you
WANT to know? THAT doesn't entitle you to ANYTHING. Put yourself in the shoes
of the people this article is talking about.... I think You'll have a different
From Lois Collins:Deb Neklason released the couple's name so people
would not worry needlessly. The couples name is Mr. and Mrs. George Frye.It's important, she added, to know that if you are a direct descendent
of this couple, and born around say, 1960, the chance you would carry the
mutation is less than 1:8000. (We can precisely calculate this because each
generation has a 1:2 probability and the family dates back 14 generations). So,
no one in current day is implicated as having the mutation just because they
trace back to the founder.
If you are worried about having this gene, look at your family history, and go
talk to your doc about getting scoped.
I was diagnosed with advanced colon cancer at age 50 ( 9 years ago). I survied.
My mother died at age 50 from colon cancer, as did HER father. HIS father died
of colon cancer. My cousin died at age 53 from colon cancer. HIS son died
at age 32 of colon cancer. We all have ancestors that come over in
1630s. We never lived in Utah. BUT, I AM Mormon (only one in my
family). My daughter has been checked at age 30...very 5 years, too.
I am checked every 3 years. I knew nothing of THIS gene until now...but,
it does not take a medical genius to know this is genetic..I figured it out 9
If you don't have a family history of colon cancer, you don't need to worry what
the family name is. If you do have a family history of this specific disorder,
I'm sure the UU would cooperate with you and let you know all that you need
to.With this large a prevalance and at such a young age, you'd know
if it was in your family.
What are the last names involved in this study? We have the right to know,
especially if it could concern our health.
Both my mother's and father's families can be traced back to the 1630s in Maine,
Massachusetts and Nantucket. The population was still very small then, which
makes the possibility of a connection much greater. But what is the point of
issuing a health warning if you leave out the most important part? Those of us
that may be at increased risk should have the right to know. I have no interest
whatsoever in the personal business of people living today in Utah or NY.
How come these people-Ann and DC know the family, but the names of the common
ancestors are not being divulged to the rest of us?
My wife is one of these families and has FAP as does one of my daughters as well
as her father - luckily we caught things in time to remove her colon. We worked
with Huntsman providing a detailed genealogy in order to help trace this
Within the next ten years, technological advances will make it possible for
time-traveling 'elimination' squads to prevent these individuals from passing on
their mutated genes.
What has cross breed get to do with it? must Mormons in UT are of English blood
I am a member of "the NY" family, I am 42, at age forty I was diagnosed with
colon cancer, I had an ileal anal anastamosis and am cancer free today.
Thirteen years ago my mother died from AFAP at age 48,leaving behind six
children, the youngest of which was 6 yrs old. I am a mother of six children,
my youngest was 20 mos old when I was diagnosed~ THANK HEAVENS for the UofU's
research and findings!!
Amazing! I am just floored by how incredible this discovery is!
Are they protecting the names of the family line because it may be an unusual
surname? When one reports on something like this that may change the lives of
many more people, they should be willing to report all the facts, not
conveniently leave out the most important one: What are the surnames of the
families that are involved in this study? My maiden name is an unusual one and
it harkens to the British Isles. Release all the facts.
Responding to "Think About It". Yes, DO think about this. Today there are
millions of descendants of this single couple with millions of different
surnames. Revealing the name of this ancestral couple from the 1630s could in no
way create havoc with medical insurance for living individuals today. Many of us
tell our doctors about medical conditions of our parents or immediate relatives
with no negative implications insurance-wise. Furthermore proving an ancestral
line is not all that easy. (unrecorded adoptions, illegitimacies etc.). What one
thinks is ones ancestry may not be so.
I descend from several English families who arrived in New England (Wethersfield
CT) in the 1630s. Many Americans know a lot about their ancestry (not just
Mormons) so we are all now left wondering...having been left with only questions
and no answers with your dangling of this rather startling tidbit. If the name
of this couple is never disclosed you are doing a disservice to the population.
It is sort of "Thanks...but no thanks!"
If the names were divulged, then the insurance companies could make the lives of
those descendents miserable by not insuring them for certain risks of cancer.
Could be a pre-screening motive. Think "Minority Report".
Not the current living people, but the family line so that people can know if
they are descendants and can know if they need to get screened.
The University is not releasing that information to protect the privacy of
What are the surnames of the families involved? It would be nice for those of
us who can trace their family to the 1600's to know so we can get screened if we
happen to be descendents.
that whats u get when you cross breed!
It would be nice if they could divulge the names of the ancestor couple with the
faulty colon gene!