Thank you for sharing. What wonderful parents you are to all 5 of your children.
Love and joy to your family.
What a blessing it is to have a sure knowledge of the absolute reality of
Heavenly Father's Plan of Salvation! Of all the blessings of the
Gospel....the Book of Mormon, the reality of living prophets and apostles, the
Lord's tender mercy and willingness to forgive....the one aspect of the
Gospel I cherish the most is my understanding of the truthfulness of God's
plan for us, His children. Indeed, e-v-e-r-y-t-h-i-n-g, to include the
Lord's amazing atonement, exists only to support and to bring about
Heavenly Father's wondrous plan of happiness.May God bless this
family and all the rest of us, too, in our times of need.
Oh, my heart goes out to this family. Our son was born right around then and
will celebrate his 4th birthday this week. He also has full Trisomy 18, and it
has been a real journey of faith as he teaches us, and we get to care for him.
His heart issue wasn't nearly as severe as this little one, but every day
is a gift we didn't think we'd get. And we've learned to treasure
each day with our other children as well. What a beautiful, heartbreaking
blessing these precious ones are.
One day doctors will have discovered the cures or treatments for these
conditions. Now they can do surgery while the baby is still in the womb for
spinal bifida, repairing the spine. Miracles are happening every day.
Thanks for the story. We also had a baby girl born and die in 2010, in May
(lived 2 days). We knew of problems before she was born, but elected not to
abort. So glad she is part of our eternal family. We have friends who had a baby
shortly after ours, who was born with problems and made it for a year. I believe
it was much harder for them, not knowing for a year what was going to happen.