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Comments about ‘14-year-old boy is losing his sight but sees a community there to help’

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Published: Saturday, March 8 2014 10:15 p.m. MST

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I know it. I Live it. I Love it.
Provo, UT

"What's frustrating about it is there's nothing you can do about it," Sorensen said. "You get bad news like that and usually your reaction is, 'What are we going to do to fix this?' and there isn't anything except accept it."

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In rare circumstances like this I usually think the only thing you can do is pray, adjust, and remember to move forward and embrace everything good you have.

It seems they have a fairly similar outlook and are acting on it. Awesome!

DEW Cougars
Sandy, UT

To Brenden Sorensen and parents

I have Usher Syndrome type II. I am in the 50's and can still see and hear a little bit. Over time I continue to lose my visual field little bit a time. I was diagnosed with this condition at your age and can't see very well at night but I am able to get around no problem. Now my visual field are about 5 degrees and I can get aruond with or without the cane. I was told by many doctors that people with Usher may not go completely blind ever. I hope that is true.

im4kids
AUSTIN, TX

I have a lot of connections to the Deaf and DeafBlind community in Austin, but no longer in Salt Lake/Midvale. There are strong communities all over (Arizona, Utah, etc.) Please find this community and immerse yourself in their positive outlook - seems like you will fit right in! You will have struggles, but with your family support and your positive nature, this will be a great way for you to help others and show others how to look on the bright side! My prayers are with you and your family as you navigate your way through this new challenge.

DEW Cougars
Sandy, UT

Continue

Did you know their are three types of Ushers. Look at Fighting Foundation Blindness for better insight. I don't drive too but I can get around fine. Talk to people at Blind Center which they too have good resource for Usher. And, you can go to college which I recommend looking into Gallaudet University at Washington DC. I went to BYU instead but I didn't know about Gallaudet which I heard is a good program.

Enjoy your trips around the world and don't give up hope on your sights & hearings. Who knows, Gene Therapy will come soon which it is in the work on mice or something.

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