Comments about ‘Utah families grapple with rare disease, hope for progress’

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Published: Sunday, July 21 2013 2:00 p.m. MDT

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Saint George, UT

Sometimes the greatest Hero, is a good Mom. Much respect for this mother and those parents like her.

Orem, UT

Thank you to the doctor who said, "A child should not suffer just because their condition is rare, so to see that it's made a difference and to receive that recognition really means a lot to me."
I'm grateful to doctors who study rare diseases and help just the few.

And I'm glad they have used the internet to offer support to one another. It's so important!

My daughter has a rare disease (1 per million) called XP. You can find more about it by searching Anna Liberty XP.

Clovis, NM

Thank you for the dedication of good parents, both moms and dads. This is a thankless job and two good parents make the job just a little easier. This young man is one lucky boy to have family support.

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