Comments about ‘Mormon with rare skin disease paints, sings and reaches out to others’
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Thank you, Kylie, for this well-written article!
Jamie, it's so good to see you happy! I miss our EB reunions at the Bees' games where we would get updates on everyone.
You picked a good man! You deserved the best. And I love your voice also!
Best wishes to you and Taylor.
Martine Smith
Mother of 2 EB children (deceased)
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