Mormon with rare skin disease paints, sings and reaches out to others


Return To Article
  • Marty22 salt lake city, Utah
    March 22, 2013 6:06 a.m.

    Jamie, it's so good to see you happy! I miss our EB reunions at the Bees' games where we would get updates on everyone.
    You picked a good man! You deserved the best. And I love your voice also!

    Best wishes to you and Taylor.

    Martine Smith
    Mother of 2 EB children (deceased)

  • Taylor Hartley Alpine, UT
    March 13, 2013 12:39 p.m.

    Thank you, Kylie, for this well-written article!