Comments about ‘How will I die: Finding hope in hospice’

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Published: Sunday, Feb. 26 2012 1:00 p.m. MST

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jrgl
CEDAR CITY, UT

The shock came with the bill from Hospice, which the Dr's, nurse & Social worker understated the cost. It cost $5,000 per month. The Dr. came to the home only one time. We would wait and wait, with a nurse coming one time a week. A social worker came. I just never saw $5,000 worth of care. No one was at the home 5 days a week like the example in the story, we were on our own much of the time. It's just so expensive.

kanaka818
West Hills, CA

jrgl: Your comments surprise me. My mother had advanced Alzheimer's and when her doctor, in his belief, that she would not live more than 6 months, referred us for hospice care in my home. The care they provided was wonderful. They provided a nurse's aid twice a week for help in bathing, changing linens, etc. A nurse came once or twice a week for medical assessments. The hospice doctor visited a couple of times during the 6 months she was under their care. When death seemed very near they provided a full time nurse for a couple of days until she passed. They provided all her medications, diapers, a fully adjustable hospital bed and a wheel chair. I didn't pay one penny out of pocket for this service. Medicare paid for everything. I have no idea what happened in your case.

jrgl
CEDAR CITY, UT

kanaka818:
We were private pay, not medicare.

jrgl
CEDAR CITY, UT

The good thing about Hospice was that there was a number to call for help, 24 hours a day. An answering service would page a nurse to call back. We didn't have to go to the ER anymore. There was a DNR in place. I should note that a three day hospital stay prior to being released to Hospice cost $19,000 (no surgery or anything) so it is less than hospital care. We used the Hospice featured in this story in Utah. I just felt like the nurse, social worker and Dr needed to know that their estimate of "no cost - we're non profit" to the social worker estimating it would be just under $3,000 a month were both wrong. The shocker was the $5,000+ bill each month. I think the Hospice people need to know what it costs & be willing to disclose the costs up front so that the consumer is aware so that it is not such a shock when the bills arrive. That is a problem with all of medicine I know. Even with insurance there is so much that is not covered with deductibles and copays.

lishmagish
Midvale, UT

CareSource was wonderful when they cared for my grandparents, who passed away last year 3 1/2 months apart from each other. I felt like they prepared my mother and her siblings with what to expect as they declined. As a grandchild, I was pleased with the care we all received from the staff at the center when my grandfather was there, and from those who cared for my grandmother so she could pass peacefully at home. I strongly advocate for hospice care!

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