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New drug is easing debilitating, chronic pain for patients who are suffering from the widely misunderstood disease

Published: Friday, March 6 2009 12:00 a.m. MST

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Grizzly

Bravo for these people and for the researchers who come up with meds that are able to help. Fibromyalgia is real and debilitating, It isn't reserved for older people either. I hope to see more on the study and look forward to real progress in pain management.

Thank You!

Thank you, Janis and all of you people out there that show there is no limit.

Other meds?

My wife suffers from fibromyalgia and takes Lyrica which has helped quite a bit. She has to take Ultram for the pain as well--which is quite expensive. I am hoping that the new drug may be able to replace the Ultram. How exciting!

Troy

Janis, come rain or snow, you're my hero.

Charisse

I am Janis's daughter and I just have to say what an improvement this drug has made in her life. It would break my heart to call her in the morning and just hear how much she was in. She now has more good days than bad and it makes me happy to know she can now do the things she loves to do. I am very excited about this new drug and hope it continues to bring her the relief she so desperately needs. I hope everyone with Fibromyalgia is able to find the relief my mother is so fortunate to have found. I love you mom, and it's great to have YOU back with us!

Reality

There is no such thing as Fibromyalgia. Just ask over 84% of medical doctors.

Illinois

Dear Reality,


Hope you or a loved one never goes through Fibro, as for the rest of the medical community, They have to get their heads out of the sand to practice good medical treatments.

Re: Reality/Other meds?

The "reality" poster is looking for a reaction. Just ignore that post.

To Other meds: your wife is probably taking Ultram ER which is very expensive. She could take tramadol which requires more frequent dosing, but is much more affordable.

Also, what is the relationship between the DesNews and Savella? Savella sure got a lot of shamelss pub.

Lori

I'd rather ask the other 16% who probably suffer from it themselves. Remember the mental illness stigma years ago? Now we know it exists. Fibromyalgia is real, it's not all in our heads. I wish it was. Then maybe the rest of my body wouldn't be so miserable.

Anonymous

Reality,

You need to get one! Those of us who suffer from this know just how real it is. Just because you can't do a blood test for a disease does not mean that it does not exist. Do some research before you just start spouting off!

Marie

My doctor was one of the 84% that didn't believe Fibromyalgia was real and now- after many patients coming to him with pain problems- He has gotten his head out of the sand and now has a assistant that keeps current on Fibromyalgia. I had to beg him for pain relief and now he understands and is very sympathetic.

Phoebe

I hope the D News got paid lots of money for this pharmaceutical advertisement.

Jeanine

Reality, I'm going to have to differ with you. Fibromyalgia is real and the percentage of medical doctors that agree with you is far fewer then those who do believe in it. I've been a sufferer for over 20 year and am blessed that I don't have the depression that can go along with this. What a relief it was to get a diagnosis.

I'm calling my doctor today to find out about this new drug. Lyrica worked for a short while but I'm willing to give this a try.

Hope!!!

California Mom

Fybro is painfull and at time debilitating. I have it in my shoulders and now it has moved into my hips and legs. At times it will sit you down, and even then certain movement can be painfull. Docs do make you feel like an idiot because it is the final diagnosis after so many tests. Can't wait to try something new, would love my energetic life back.

Girls mom

Is Fibromyalgia known as Chronic Fatigue as well?

Christy

I enjoyed the article. I would like to learn more about the drug and its side effects. Could it take the place of Tramadol, Lyrica, Cymbalta, and Valium? Or would it need to be another drug to add to the list of drugs that help a little? Thanks.

John

Fibromyalgia and Chronic Fatigue Syndrome are two separate conditions.

Valerie

I am excited about the new drug, but I am concerned about side affects. There seem to be so many with these new drugs. When you hear about a new drug on TV and they spout off all of the side affects it makes you think it would be better to live with the pain than the possible things that could happen to you because of the medication. Does anyone know what the side affects of Savella are?

RE: John

WRONG! Chronic Fatiigue can happen WITHOUT the pain and stiffness of Fibromyalgia, but Chronic Fatigue is ALWAYS present w/ Fibromyalgia. The Chronic Fatigue associated w/ Fibro comes from two sources; #1 the muscle tension of Fibro and #2 The sleep disturbances of Fibro. A "normal" non-fibro person's muscles relax to 2% to 4% constriction, but people w/ fibro muscles stay constricted in the 10% +/- range all the time. This constriction drains energy, causes tendons, ligaments and muscles to ache and be "stiff". Repetative actions make firbro sufferers sore much more quickly than non-fibro's. Hugh impact exercise like basketball or racquetball tear muscles. Sleep disturbances are also a fact of lfe for people w/ fibromyalgia. It takes 10 hours per night for me to even begin to cope. DO SOME RESEARCH BRFORE YOU OPEN YOUR MOUTH!

love to janis

Many of us who know and love Janis didn't even realize that she was struggling with chronic pain. I'm glad she is able to continue with the life she loves, and lives so well. She has a constant smile on her face! You go, Janis!

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