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Marjorie Cortez: Life with disabilities can serve as an inspiration
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He had lost the ability to walk by his teenage years and his ability to breath unassisted by the time he was in his late 20's. He was aided during this time by his single mother and younger sister who, until she also became too disabled by the same disease in her late teens, would wheel him around in a wheel chair. An electric wheel chair was eventually obtained to do the job.
By the time my friend died, he was barely able to control his wheel chair and required 24-hour care to maintain his breathing and other vital functions.
I think a lot about him and his great intelligence, with a mind that was completely alert and thus fully aware of his terribly diminished condition throughout his life. Even as he eventually suffocated during a prolonged power outage when the emergency power for the respirator and 24-hour aid both failed him.
I think about him because during all the time I knew him, he was grateful to be alive. It sometimes makes me feel very ungrateful.
Sometimes life seems to be dark and there is no hope. We should realize that there is hope and fulfillment no mater how bleak it looks. Things get better if one keeps pluging away.
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