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Thank you for your efforts.
While I am unable to donate, I am now aware of EB and it's effects on individuals, families and finances.
You have already changed me.
We are team EB Trek 08 and just finished our first day. We are excited about the trek, so check out our daily updates on www.ebtrek08.org and donate if you can. If you pledge 1 cent a mile, it's only $26 dollars, but it would help out greatly. You can also check out the donation divisions on the website if you can donate more. Thanks for your help and concern.
Team EB Trek 08
Thanks Guys! My 5 year old son Zack, who has eb was so excited to meet you and we are so impressed that you are helping raise awareness and funds for research.
Memories of Youth bike trips come flooding back... you guys are inspiration, both to those who live with this disease and those who will be motivated to do something themselves to make a difference. Good luck! We'll be thinking of you... and trying to raise some money!
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