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Comments about ‘Rare disease leaves burn-like injuries’

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Published: Tuesday, Sept. 20 2011 11:55 p.m. MDT

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SSOLDMAN
MONROE, UT

There is nothing that can bring a family together like a serious illness or injury. What an aweful thing to live with. Sure hope they can find a way to stop the onset of this disease.

Nan BW
ELder, CO

There is no information here about a fund to help those afflicted. Does anyone have that?

DeltaFoxtrot
West Valley, UT

This is the problem of medicine for profit. Many rare but serious medical conditions are ignored or back-burnered because the drug companies won't make any money off of creating a cure. It is also why we can treat diseases like Alzheimer's, Parkinson's, MS and diabetes but not cure them... the drug companies are making too much money from keeping people strung out on pills and shots for the rest of their lives.

We have the technology, there are dedicated scientists willing to put their minds to the task, but corporate greed steps in and shuts it all down.

MoJules
Florissant, MO

My heart goes out to the people who suffer from this disease, I also admire them for their courage to live with that day after day.

The30353
Clarksville, TN

I have seen several cases of this over the years, although I am more familiar with the term bullous pemphigoid to describe this. It is an autoimmune disorder that causes blisters over the body that are tissue thin. One thing I have noticed with taking care of these people is that often a medication is suspected as being the cause of the immune system malfunction, especially dilantin. Of course, this is very rare reaction, so don't change meds based on a comment, as I can only remember 4 or 5 cases over the years.

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