Comments about ‘Unbreakable: Despite brittle bones, 4-year-old leads full life’

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Published: Sunday, May 29 2011 12:29 a.m. MDT

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DEW
Sandy, UT

Thank you for sharing about Nathan, what a fine young boy and a fantastic family. Good luck.

David B.
Cedar City, UT

What a beautiful little boy and at the same time I'm very sad for him too. It has to be tough not to be able to fully engage with siblings.to go thru the pain of breaking bones at the slightest touch. I applaud the parents and their judgement to bring him into the world and not discard him because he wasn't perfect in their eyes. I hope Ryan does have a happy life but it will tough on all. I wish him and his parents all the very best in the future.

peter
Alpine, UT

Our son was born with OI, the mildest form of it, almost 30 years ago. So he survived natural childbirth, somehow. We didn't know as much then about the disease. He fractured his left femur three times when he was two years old. On the second break, the orthopod suspected child abuse. Fortunately, after having our son seen by many "experts" and not learning the diagnosis or prognosis of his problem, a geneticist at the University Hospital, John Carey, diagnosed OI when he was four years old, telling us there was nothing that could be done to change the course of the disease. So far, the only time he experienced hearing loss was during his teens. In fact, he'll be turning 29 this year, and his hearing seems to be improving some. He won't have children, I think because of the 50% risk of passing on the disease. We were told that girls would carry the mutated gene without having the collagen disorder, but that boys tend to express the gene. Intellectually, our son was always at the top of his class and district scores. His classmates called him "genius." Continue to have hope.

Smiley
Taylorsville, UT

I admire Nathan's parents for letting him lead a full life despite his Ol disease. It's wonderful for me to hear about Nathan enjoying life. I love hearing about his contagious, happy, cheerful & positive attitude. Nathan will do great things in life & already has.

mytymouse09
SALT LAKE CITY, UT

What a touching story. I admire his parents for being so willing to let Nathan experience so much of life. What a special little boy--I couldn't help but notice that he was almost constantly smiling! Makes me ashamed when I get down sometimes over pretty trivial things.

RG
Buena Vista, VA

We had a baby girl with OI May 2010. We learned in January that she was a probable OI case; the Drs. couldn't tell us which type, or how severe it would be. They tactfully brought up abortion, we said no, and they never brought it up again. My wife had severe preeclampsia at 7 months pregnancy necessitating a life flight to a big hospital, and a C section. Baby was born with broken bones and lived two days, but her 5 siblings got to meet her, and we blessed her in the incubator. Her mother and I were in the NICU when the alarms started going off, and her breathing became abnormal. They tried twice to resuscitate her then told us it wasn't going to work and we should hold her during her last hours. She lasted several more hours, and ward members got her siblings to the hospital 75 miles from home. Genetic tests were unclear so we could never definitively figure out which type of OI it was, probably type 2. Poor rib development made breathing difficult besides the early birth. Since her exaltation is guaranteed, she's the child we worry about least

teri88
Spotswood, NJ

what a heart warming story. Nathan is a special spirit and the Glad's are blessed to have him in their lives and in their family. Good for them, raising him to experience all that he can instead of wasting their time feeling sorry for him and themselves. What a family!

Chipper73
PROVO, UT

Thank you for the wonderful story and for sharing Nathan's life with us. My sister was born with severe OI 54 years ago. Nathan reminds me so much of her. She was just as happy and positive. My prayers will be for your family and for Nathan's continued progress.

one old man
Ogden, UT

Thank you for making my day a bit brighter.

COUGARNATE
Lyman, WY

Keep defying all the odds Nathan! We are cheering for you!

just-a-fan
Bountiful, UT

I'd been looking for a hero...Thanks Nathan, now I have you!

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