Comments about ‘CdLS: Foundation reaching out to people, families affected by rare genetic condition’

Karli Bowman is my sister. CdLS is a syndrome that not enough people know about. I am thankful for the CdLS Foundation that helps those families who are struggling with this syndrome. This was about five years ago, and let me tell you, Karli has not been an easy sister to take care of. Although her case is mild that may be a huge problem for our family because she IS able to comprehend the challenges that she has to push through and she struggles PLENTY with it. I'm very, very greatful that we have been blessed with her mild case, others are not as fortunate. I'm her younger sister I take care of her as if she were the younger one. I love her with all of my heart, and i'd do anything to spread the word about CdLS.