Hello John and Robin,I just saw this article this week. I would love to
talk. We too are a family of multiple autistic individuals. We have found help
for our girls and want to offer you some help.Here is a recent story about
our family. I have been locking for contact information but haven't found
you yet. God Bless,Elizabeth H.
I am a mother of a six year old autistic child. I am having a really hard time
right now with him. I will pray for you guys cause I do not know how you guys do
it with 6 autistic children.
after seeing your programme i think myself lucky i live in england.the system
here is far from perfect & what you get depends on where you live & sometimes
how loud you shout.i have 3 asd kids,1 typical, 1 aspie & 1 hfa. my kids
get specialised education. 2 are on aba programmes. special needs dentist & good
healthcare. my severe son also gets respite care via social services.i don't
have to worry about health insurance etc.its still hard dealing with all their
problems.you live in the world's most wealthy country, yet seem to get so
little help. there must be usa charities that will help sort out your house,
give some respite etc.taking kids into care should be a last resort. helping you
should come first.i agree with your outlook that you have asd kids & have
to get on with life. make the most of it. we are probably happier than many
families with normal kids. i don't actually believe in god, so don't hold
him responsible. one day the government might tell the truth about why there are
now so many asd kids.
I think how much I struggle with two autistic brothers and then I think... they
have 6! I think your approach to it is magnificent!
i work with autisicclinets at work and thay amaze me so much to see that
thay can do so good in a work setting I work with one clinet who lives on his
own so John your doing a good job keep it up and always look to the lord
for help your friend in christ jeff
I just saw your program. I am the mother of one, and grandmother of 3 , healthy
all. You are amazing people, an example for society to follow. The world is a
better place because you people are in it!(and all those that help) I found
myself crying with relief, the B'party was a sucess! You and your children have
a really important mission. Thank you so much, for your courage, and tremendous
I have 4 kids, 2 with autism. Caleb is 9 and Gabe is 7. I've read your blog
for quite a while, and followed your story. Good Luck and Good Job!
I saw the special on Discovery Health. I have a son with Asperger's and worked
several years with behavior modification in non verbal children. I had a
problem with labeling the cognitive skills of a the non verbal children as that
of infants. It seeamed so hopeless. Of course they score so low on those
cognitive test, they are non vebal. Don't short change those kids and write
them off as never being able to do anything, ie potty training. Have the
Kirtons tried sign language or other gestures for comunication. Also, the
special showed they were at an autism school. How much time do these kids spend
with children who are typically developing. The special seemed very depressing
and I wanted to fly to Utah and help that poor mother.
I just watched the show on Discovery Health and I APPLAUD both of you! My
daughter was Dx'd at age 7 with Asperger's. She is now 13. She is High
Functioning and has social issues (which, are getting BETTER) and has NO
organizational skills and has a problem keeping her room/things tidy (typical
teenager too!). We just MOVED from Utah and I wish I would have read this story
beforehand as I'd love to have met/help you. Unfortunately, INSURANCE companies
will NOT pay for Speech Therapy (cognitive and speech therapy) UNLESS needed due
to an illness or injury. I worked at a hospital in the Speech & Hearing
department and I was heartbroken when I called insurance companies to seek
"therapy" for children with Autism and they were DENIED constantly. They
wouldn't even cover the initial evaluation! I would love to have my daughter get
in touch with your sweet girl as she also loves to draw and read! My daughter
was so excited when she heard this on the show! I'll continue to watch the show
and keep up the FANTASTIC work and I, too love your wit and compassion you have!
Im the single mother of 3...my youngest 14 is diagnosed pdd nos back in 97...I
wished there was as much info then as there is now...HES non verbal...non
I have had been major difficulty of being more sociable and verbal with others
since childhood. Constantly I bahave bizare and I am unable to be honest enough
to tell the entire Difficulty with overall oraganization and planning I ramble
from one activities and tasks to another especially in conversations. My mother
still has be with my case at all times to be corrected with reminders I am more
competent enough to handle them for myself, it is indicate signal as being
I read your story with great interest. I realize it has been a year since this
story was published, but felt compelled to submit a comment. I admire your
determination to find a way to live with a difficult situation. My 19y.o.
daughter has mild Autism (Asperger's) now, but she was much more severe when she
was younger. Dealing with Autism can be exhausting on so many levels. I hope
by now your community has stepped in to help. If not, here are a few
suggestions: Ask your local college for medical, psychology or child-care
students needing 'in-feild credits' to come work with your kids . Usually, they
will do this free. If Utah has few services to help you, I know that North
Carolina has a system in place for helping kids with Autism. They call it
TEACCH (www.teacch.com) It is worth checking out. Here are a few of the
credible medical interventions that I know can help with the hyperactivity,
hyperacute hearing and light sensitivity: www.danconference.com (a nation-wide
network of Drs that specialize in working with the autistic) and www.autism.com
(The Autism Research Institute). You may conact me via email if you wish. God
God Bless you all.. i bet your all wonderful parents,well i have
anaphalaxtis which is one of the most life threatning things.put me into
hospital on many occasions. then i took to many drugs for it which has made me
liver and kidneys not mune to it anymore.
After seeing their house on their blog I would say the place looks like a fire
hazard! Do these children receive intensive ABA or do they just let them destroy
everything? Get some decent intervention for the kids and get out of Utah. What
a backwards state when it comes to autism!
I have a son who has Asperger's and when he was younger it was very difficult
because I didn't know he had Asperger's until he was older. The good news is as
he gets older it does get easier.God bless you and your family. I can't
even imagine how hard it would be with six children. I give you and your wife a
lot of credit. My thoughts and prayers are with you.
I work as a Community Disability Worker in Sherwood Park, Alberta, Canada and
have had the opportunity to work with some amazing people some of them Autistic.
I have learned so much from them and my hope is that people do not pass
judgement so quickly. If you are interested do a search on the computer and look
up the Robinhood Association in Sherwood Park, Alberta, Canada. It is one of the
most amazing places for disabled people to learn skills to work out in the
community, do leasure activities in the community and go and have fun and
laughter. I consider myself one of the luckiest people to have the clients in my
life. Please keep ut the good work.Your whole family is amazing and just
remenber that there are some very nasty people who dont get it.They always have
a opinion weather they know anything or not. I give you so much credit for what
you do. Please stay health and happy
I know someone with 9 autistic kids and she's a single mom. I'm a single mom
with 2 disabled kids, although one has Tourettes and other disorders, not
autism. It's difficult!
After having read the article about your family in "WHO" magazine in Australia,
which is the equivalent of "PEOPLE" magazine in the USA. May God bless you a
thousand times over. If more people in the world had the compassion and love
that your family has,the world would be a better place. I find it distressing
that people could be so negative and have no sense of community..maybe this is
why the world has lost its sense of compassion and is so focused on selfishness.
I wish you all the goodness in the world and God Bless
I have several friends with children that are autistic. They have been able to
decrease and eliminate some of the symptoms of autism by using a nutritional
cleanse. If you would like more information you can email me. I know that
parents of autistic children will be extremely blessed for caring for these
incredible children. May the Lord bless you.
God bless you. You sound like wonderful parents for these special kids. As a
parent of identical twins with autism, age 34, and still living at home with us
I can only imagine the stress you have but also the wonderful rewards of loving
these great people.I know what you mean by mean people, people who think
they know more than you do about what is good for your kids. Fortunately we
have had many good people in our lives to negate the mean ones. It is a shame
people are not more tolerant and appreciate our kids. It would indeed be a sad,
sad world if everyone born into it were the same - how boring.Love and
prayers to both of you.Phyllis
God Blesss you all!! I have a son with autism. He is very loving, handsome,
and social. He is also nonverbal and recently began to get really violent. I
choose to start him on Risperidal and it is working in regards to violent
outbursts and his ability to tolerate frustration (it took me two years to make
this decision)---his father sees him but is not really involved with everything
we go through to get services and day to day living, nor much financial support
and next to no emotional support). So we are on our own, him and I, and do not
really have family support either, our friends have become our family through
the years and have been the ones that have helped out through the ups and downs,
especially my two friends Wendy and Jerod. And his teacher and aids have been
angels!I am a single parent and feel so overwhelmed at times, I feel
God gave me more than I can handle. Sometimes at a breaking point. I just don't
know how you all do it.My prayers will be with you always. Please
feel free to email anytime. Love to your family:)
Some say my son may have been diagnosed with Autism if I had got him checked
sooner. I waited and put off even though we had early childcare issues and any
structured setting such as daycare facilities could not handle my son. My son
was finally tested by the local school system and the area children's hospital
around the age of 5 1/2 with both stating Asperger's. I know that some hate to
put a label on their child but our lives became much more easier with the help
of our school system, iep's and understanding teachers. It's true that there is
so much more literature out there now but there is still much to learn and
insurance companies need to start paying for some of the treatments that do seem
to be helpful but are not classified as "medical" or "necessary".
I want to tell you how much respect I have for you. I have 3 special needs
children 1 is autistic and the other two have a genetic syndrome. I wish that I
had some parents that I could relate to and I would love someone to just talk
to. Not all parents understand what goes on on a daily basis..or an hourly
basis. I too have baricades and locks all over my house...as well as plenty of
walls that could use a good coat of paint!!! My ultimate opinion is I feel that
I will end up learning more from my special children than I would be able to
offer them. Hold on tight to all of your "Autistic Angels" and smile. I know
that I do every day and I thank god for giving my the BEST opportunity that I
could ever imagine having as a parent. God does not make mistakes everything
happens for a reason. For anyone doubting an autistic child being a gift from
god needs to read "Autism and the God Connection" I believe that our children
are much closer spiritually to god than most realize. God bless you. Keep the
Greetings.As a Higher Functioning Autistic, I personally do not
think autism is "devastating". I'm not a parent and I know it was stressful on
my mom (who was a single parent while I was growing up). Yes, I definitely
think there should be more emphasis on awareness, but pointing out the fact that
autism as non-curable or non-treatable will only give people the wrong
impression. I am all ready having enough difficulty holding a job - and I will
graduate with my Master in Library Science in May - due to my anxiety issues
(associated with my autism and auditory processing disorder). I attribute the
fact that I am higher functioning due to my mom's sense of humor, use of
sarcasm, and the fact that she raised me with lots of structure and life skills
from the get-go. I mean no offense. However, the use of autism in any
proiximity to the word devastation (or any other similar words) is an insult to
me, as an autistic. Yes, my life is difficult and not status quo, but it is not
devastating. As Whoopi Goldberg says "Normal is nothing more than a cycle on a
washing machine". Thank you.
Will remember you when in my prayers.
Wow!!! Bless you guys for what you are doing and the efforts you make and most
of all your humor. I had a husband die when he was 37, we knew that he would be
dying from a disease in the MDA family, we had to do a lot of laughing. When my
present husband told me, while we were dating that he had a form of Muscular
Dystrophy, I started to laugh, I have about 6 very close friends with diseases,
MS, Chrons, Lupus and such. I care for my mother in law who also has the same
disease that my husband has. People joke with me and say they better not get
close to me, cause they will either die or get a disease. I truly believe that
we came here with distinct dispositions and mine was the elderly and disabled, I
taught seven people on my mission with different disabilities and have been
helping and caring for them for 30 years now. This couple seems to have the
disposition of caring and raising these six children with their individual
needs, bless you for that, I did just fine with my only child who was very mild.
Let us not be so judgemental of each other. None of knows what kind of
life that fate has in store for us. Things will get better; the children will
have their successes, just never give up hope.God bless you for
loving your children.
I have a 19 year old boy with asperger. I wouldn`t trade a minute of our time
with jeff. he`s so precious and a gift from God. It`s so hard for him to fit in.
It`s harder on us maybe, we do all the worrying and praying. We`re older and he
is adopted grandson. My heart has been broken over and over, people don`t
understand and family is worse. They think we can do something about it. But it
is all in God`s hand. God bless you all. Hang in there. It`s all worth it. When
you look at that precious face and wonder where would they be if you were not
there. God trusts you with those babies and he chose you. not just any one YOU.
Just praise him and thank him for all your blessings. Amen. Thank you guys for
being out there. You will help others I`m sure.
Dear Kirtans,Thank you for sharing your family with ABC. To find your
family story while trying to find a job, check on the winter storms; I was
overjoyed to hear that a family with more roadblocks than dirty dishes, no car
or job made a signal, widowed mother of two beautiful healthy children that just
pulled her groceries home from the local mart on a childs sled look like she is
doing alright, too. Almost, eight years later, we are still healthy and strong
even if we are with out the luxuries of a car or job for now. You are doing a
fine job! I guess the struggles I go through by myself with my 2 compared to
you-two with your 6 I am at least a C to your familys A- The only thing that
holds both our families back is WorldsBiggestBankAccount. Money doesnt solve
every thing it does make it a bit easier to swallow. Thank you for being such
great parents, truly!
I find your story inspiring. It gives many other parents hope and perspective
when they are going through their tough times. Some people just do not
understand how each and every child is special in their own way. Your children
are very special. I wish your family the best and may God Bless all of you. I
look forward to hearing how things are going in the future.
Don't judge. I have 1 asperger's kid, 1 bsehavioral disorder and one pdd baby.
Aspergers is more prevalent that people realize and tends to affect boys more
than girls. Before Asperger's was generally diagnosed these people where
thought to be absentminded professors with poor social skills. If you have an
aspergers kid. Check out your cousins and uncles. They probably act the same
way. I know mine do.Good luck.Ignore the haters. There
is no way on earth that you could have known your kids would be that way. you
have to be their advocate and fight for their rights thats what I do.Keep on going!
I cannot beli
To parents and other family members of children with special needs:1. Know
your rights. Look up the Individuals with Disabilities Education Act (IDEA),
federal legislation which requires that states provide services for children
with special education needs.2. Find the resources you need. Contact the
state department of education, the closest children's hospital, the local school
district, county or city social services agencies, respite care services, the
nearest LDS church, parent support groups, mental health facilities, etc. Ask
for help and for referrals to other sources of assistance.3. Advocate for
your precious child. No doctor or other professional knows your young one better
than you. Persist until you get what you know is best.4. Beware of
charlatans offering miracle cures and asking for large sums of money. Your money
will go away ... your child's problems will remain. 5. Seek advice and
comfort from others who know the challenges you face, especially other parents
such as those who have shared their stories here. 6. Love, appreciate, and
support your spouse. Give one another some needed "time off" on a regular basis.
7. Strengthen yourself spiritually, regardless of your faith. You are a
child of God.
Bless you, Angie Welling, for an excellent article ... including the necessary
facts and a look at the reality of living with autism spectrum disorder. For nearly thirty years, I have been fascinated with children who have autism.
As a latter-day saint, I believe these children are special spirits. They have
been sheltered from the evils of the world and will not be held accountable for
their actions. My heart aches for the dedicated parents who have been treated
with cruelty rather than compassion by the Utah State Health Department. It
seems that agency was quick to judge but offered no desperately needed services.
I pray for this family and invite the parents to seek the help they - and
the children - need. Other states offer more services. Check out Wisconsin, one
of the first states in the U.S. to pass legislation giving specific rights to
parents and students when special needs are suspected (1973).Thank you,
Deseret News, for enlightening the public. You have blessed many this day.
children are blessings from God. You were given such special blessings because
He knows that you are up to the challenge...Just do not forget to look up not
down when the going gets tough.
Funny how everyone I know that have children with autism, pretty much let the
television raise their children. Even in one case the child was diagnosed, and 3
yrs later after having no tv, and more attention she was given a clean bill of
health with no autism. I do believe some children are born with it, but there
are others that are raised by the tv with no actual human contact other than
bath, diapers and feeding. Then they are diagnosed and the parents are all "Why
do we have a child with autism, what did we ever do". A lot of people need to
realize the tv is not a baby sitter or a nanny. If you plan on someone else, or
something else raising your kids than maybe you shouldn't be having any. A 2
month old that cries when blues clues is turned off and stops when turned back
on, that is absolutely ridiculous and uncalled for. I've seen it myself.
I have three children on the spectrum, 16,14,13, the two oldest are boys the
youngest a girl. the oldest boy has bipolar disorder that is controlled with
medication. the 14 year old will go and just read or be on the computer all day
if he was allowed. my daughter is much like Mary she gets on one subject and you
are stuck listening, she has meltdowns and tantrums several times a day. All my
children attend regular education classes they have a tough time keeping up with
homework, bringing it home and then doing it. We have tried many things and
what has worked best is giving them as much structure/routine as possible. We
have always taken them out in public to the store for groceries,
haircuts,clothes shopping,restraunts, they must know how to interact with the
public. Our marraige has taken a huge strain, we don't always see eye to eye on
how to handle things, but we have our blow ups,and then we go on. we do believe
God allows parents to have children that may need more help, but he will NEVER
leave you stranded, he is always by your side,waiting. Keep up the good work !
You guys should just drop them off at an orphanage wen there diagnosed god.
I'm glad I read the entire article because you stated some very important things
in the 2nd to last paragraph. I too have always felt that it would have been
too easy for me to have a "normal" child. I also believe God threw me a cure
ball and gave me a little extra to deal with. I didn't have children for 13
years of my marriage and was jealous of those that did. I thought that I could
be a better parent that anyone I knew. We finally adopted a beautiful baby boy.
Although I divorced before my son started showing severe signs of anything, my
husband would not have been able to handle the day to day with an "un-normal"
child. He still doesn't know really how to deal with him now that he's 14 and
acts more like he wants to fit in. Jan's statements above about people asking
her why she doesn't give the child back also struck me because after reading
alot on adoption, there really are people who do that...and they even have a
name for it. I could never do that. I waited to long for this child and love
him so much.
I have a child with aspergers and I really can relate> He was 12 before we knew.
I just want to let you know that it does get a little easier as years go by. My
son is now in eighth grade and with medication and support He is now Starting to
do much better. He also is making honor role.Just stay on top and read a lot
about the different help that you can get. There is a lot of free help out there
I have 8 grandchildren. My son has 3 children that are not autistic, my daughter
has 5 children with 2 that are autistic, I love them all, but the 2 that are
mildly autistic I love them too much, where I just want to baby them, they are
11 and 10 years old respectfully, only my daughter just only had the 2 oldest
diagnosed, but being a concerned grandparent I've noticed the 3rd child who is
going to be 6 years old was little slow in verbalizing, you couldn't understand
one word he said. My daughter works in the evening, to get out of the house, but
I feel she needs some intervention with the first 2, possibly the 3rd one also.
The last 2 are paternal twins, boy and girl, which they are just fine, just a
I have two boys. They are ages 14 and 8 and both are on the spectrum. I
know what life is like for these parents. I understand the frustrations and the
pain. I also turn to humor to get through my day. You have to. My prayers are
with you and your family. Embrace each one, they are unique and God has
entrusted you to take care of these special ones. I do feel that God hand picks
us to deliver these special ones to. God Bless You and Yours,
Your article just reminded me how tired tired could be and I only had one
severly and profoundly handicapped child. My friends the Breedings had a very
large family of very special children. I never understood how they managed but
they learned a lesson early which took me more years to learn. The lesson that
the greatest gift you can give to a friend is to let him minister to you in HIS
name. I agree with the others above. Let your ward or stake into your lives
and bless them with the gift of the Lord's work. I am not LDS but I have been
aided by contacts with church members through the Air Force. I'll never forget
Amy and Dawn and Lu. They stepped in and started the lesson, it took growing in
my faith to understand and accept it.
Dear Robin,I bristled when I read your comment about God knowing you
were up to the challenge so He gave you 6 autistic kids. I believe with all my
heart that our Loving Father blessed you with wonderful coping skills and that
He supports and guides you on a very difficult journey, but did God CAUSE these
beautiful kids to be autistic? Absolutely not! No loving human father would do
that, so I cannot/will not believe that God our Loving Father would do what no
human father would?Mariposa
bless you both in your endeavors. I do believe God does place challenges on a
select few, for whatever reason.....who knows? but i pray it is for your
continued and ever growing strength. you are an inspiration to us all. peace,
Regardless of what anyone on the outside may say I think you are proof beautiful
people do exist. Your children are blest. I have 9 children and 5 have mental
illness. It takes special with great skills, alot of love and faith to hang in
there. You have my prayers. Those kids are worth our time. They are our most
valuable assets in the world.
My grandson has autism. He is a twin and his brother does'nt have autism.He lives in Florida and is getting a lot of help being that there are many
special schools and programs and he's made some progress..God Bless
You and Yours!!
Hi,I have a 15 year old,we found out when she was 2,it was not easy for me with
one,i take my hat off to you & your husband keep up the good work & continue to
love each other & pray.
My daughter is high functioning on the spectrum, and we love her so much, but
sometimes I worry so much about her and her future. I understand why you said
the thing you did and understand that you didn't mean it. There is a natural
grieving process that occurs. Please know that it gets better. God bless you and
We have a 34 year old daughter with Autism. Not as much help was available when
she was diagnosed with Autism. We didn't even know what it was but we soon
learned. We love her dearly.She loves Alf and we enjoy getting thing with Alf on
them and she collects other things. She still can't carry on a regular
conversation but gets her point across and is very quick and smart. We adopted
her at 5 weeks and didn't know she had Autism. People have said why didn't you
give her back, we love her. She is not a used car to trade in !!! She is very
special in her own way and we feel God made sure of all the adoptive couples to
Wow! I keep saying that, and said it many times while reading your story. Our
family has 6 people, and one PDD. Our son's been bounced all over the spectrum,
we don't know where he falls. We've moved so we could get better jobs, and
health insurance, and found out some states don't have a way to help family's
with austistics. Or what they do have is so limited and expensive that I try not
to think about it or I'll cry. It's actually been daily therapy I've adapted
that's moved our son out of tantrums. Although we do have make-shift barracades
around our home.It amazes me that 90% of the people I talk to have never
heard of this disorder. I say he's a little like 'Rain Man' and the most
challenging thing ever put on my plate. People have asked why I chose to have 3
more kids. Well I didn't choose God did, and I wouldn't have laughter without my
children. We will keep our hope for all of us 'parents of autism' will pave the
way for those without a path. 'Do your best with the information wisdom and
energy you have at the time'
I find your family remarkable and your humor necessary to endure what you do
day-in and day- out! Too bad many people in "human services" roles cannot react
to humorous sarcasm with that understanding. To be forced into humility is
often difficult in the process, but so beneficial in the long run. It seems
you've weathered the worst well. Be proud of yourselves.My daughter was
tested for autism when she was 3, and was found to have speech development
delays as her primary issue. She has been receiving some form of speech therapy
since she was 2 and receives it still as a 5 year old. She also needed some
moderate physical therapy but has "graduated" out of that program. There never
is a good time to hear that your child or children aren't perfect. But the
amount of support out there is amazing when you really need it. Keep up the good fight and never allow yourselves to lose that killer wit and
humor. Some people may not get your sense of humor - but there are plenty of
those out there that do!
I agree with Barbara that perhaps there is something that your ward or stake
could do to make the burden lighter. Your family situation certainly needs some
compassionate service. Have you considered talking with your bishopric to see if
teams of ward members (or possibly stake members, since you're in Utah where
boundaries are small and your problem is overwhelming) would be willing to give
the two of you an occasional night out or some in-home assistance with the
children? Young Women also occasionally have service projects, and they should
also be considered as possible helpers. Also, you might want to check with BYU
and University of Utah psychiatry departments to see if you could get any of
their students into your home as interns. Good luck, and God bless you.
My heart goes out to you I am the step-parent to an autistic child and I know
how hard and draining that it is. Most children are diagnosed at approx 24 to
36 months, why wait till 5th grade to look into this. And I don't understand
why they would look at your husbands age b/c he was 40 yrs old when your first
child from a previous relationship also has autism??? I have heard one of the
myths being said that autism has to do with the vaccines, have all your children
gotten there vaccines? that this may have a play in it?
I am a mother of 10 yr old That is High functioning and he is a hand full I
admire you very much It takes alot just to raise one but you have six I would
like to say God Bless you and your family and remember your have six special
gifts from God to make you smile!
What is the State of Utah and City and County and the LDS Church doing to help
you? You so desperatly need all the help you can get. Would your Church send
volunteers into your home each day to help you? You need better housing,etc. You
need help with the children and money to buy them diapers and things they need.
Is there a national Autistic Agency that could provide help?If only I had money
or lived neary I would help you so gladly.
I also have a 3 yr. old son with PDD/NOS and he is a hand full and I admire you
100 percent because it takes alote to rise one and you guys have six may god
bless you and your family.
I have 4 kids, 3 are on the spectrum. Like yourselves we participate in genetic
studies as my sister also has an autistic child, my mother has Aspergers and
also my cousin. It can be hard for people who don't understand Austism
that your life is no longer 'normal'. For us there is no supermarket visits or
eating out. No fairs or playgrounds as these are all extremely stressful for not
only us and our children but for the people around us.You have my greatest
admiration for just being able to survive day to day with a sense of humour. Wishing you all the best.
My non profit organization, the Autism Spectrum ALternative Program,
www.asapranch.org, would like to help your family. I have several ideas
depending on your location. My program is an equine facilitated sensory
integrtion program for families with children on the spectrum. We are in
Arizona. I would like to offer riding sessions for ALL of your children, we have
a non profit store, Gallery of Odds & Ends where we resale items, and Mission
Fish which is the eBay of the non profit world where anyone can sell anything to
benefit their organization/families. I would like to explore these and other
ideas if you are interested, please contact me.
i have a daughter who is diagnosed pdd at the age of 2, she is now 5, still
improving. In your case, i sincerely hope and pray that everything will be fine
in God's will and time. I hope that God will show us the path into the wellness
of our child/children. At first, when i found out that my daughter has pdd, i
really questioned Him, why my child, i was really devastated, i cant work, i
cant sleep, cant think straight. Even to the point that it put a strain to my
relationship with my husband. But still God in His numerous ways will try to
show us that He is the Almighty God and is IN CONTROL of everything. I didnt
say that everything is fine already, we must learn to trust God. God Bless You
and Your Precious Children.
Hi Robin and John, I have a niece that was diagnosed at Age 3. I am
a nurse and I questioned her difficulty with communication and we decided to
look into the reasons for this difficulty. Autism was the diagnosis. Due to her
early "extra help" she is doing extremely well. She is now 12 years old and is
high functioning. I know her parents went through some challenging times but
nothing could compare with your challenges. My heart goes out to you as I sit
here with both my children off to college and I just want to offer any possible
help I can. I would love to have a card designed for you and we will go from
there. I truly do believe in the SOC Message and the Carding for a Cure could
benefit so many great causes. You will be in my thoughts and prayers and I
believe that you must be the best possible parents as God has entrusted them to
you. God Bless you Both and your Wonderful Children.
Thanks Sarah for your kind comments. We are better people with all we've been
I have an autisic little girl she is 8 years old ,and a girl of 5 who is not
autisic.Life can be so challenging when you have a child with autism and
can put a great strain on your relationship.(it did with mine)You seem to go
through an emotional rollercoaster and still now you have days when you feel you
cant cope,but as parents and human beings this is a natural emotion.I
really take my hat of to you both it must be extremely difficult .I agree
although difficult it has made me a better person ,and whilst challenging so
inspiring.I wish you all the happiness for the future and i will be
thinking of your family.