Deseret News | Reader comments: Companies help keep girl safe from the sun

Reader comments
Companies help keep girl safe from the sun

bcs | 7:24 a.m. Nov. 14, 2008

way to go, local companies!

Josh | 9:06 a.m. Nov. 14, 2008

I'm Lizzie's brother, and I'm glad to see the support from local companies. I know the costs involved with the surgeries and other challenges this has brought to our family, so I'm grateful for the support. Go Liz!

This Is What Life Is All About | 9:49 a.m. Nov. 14, 2008

Helping others is what we're supposed to be doing. Good job!

Comments continue below

MQ | 10:00 a.m. Nov. 14, 2008

Thanks Jim Hall. What would we do without volunteers!

Go Liz! | 10:02 a.m. Nov. 14, 2008

What a nice story! I hope that everything turns out well.

Sandy | 10:12 a.m. Nov. 14, 2008

Way to go XP Family Support. Thank you for coming all the way from California to help a local teen. I hope you continue your amazing work for other XP kids!

Janna | 10:19 a.m. Nov. 14, 2008

I am a friend of the Tenney family and their Lizzie is a gem of a kid. I am happy to learn that they are finally learning answers to her condition and that others are helping out. Way to go companies on the look out to help.

midwest | 10:19 a.m. Nov. 14, 2008

What a challenge, for Lizzie and the whole family. Terrific there is some help available.

sue beach | 10:28 a.m. Nov. 14, 2008

My partner has XP and we met Lizzie this past June in Sacramento. I'm so glad companies are finally stepping up and taking this disease seriously. You are to be commended for your efforts. Way to go Lizzie

Debby | 10:30 a.m. Nov. 14, 2008

Hi Lizzie and family! So glad to see that you are getting the help and the attention you deserve! IT is a struggle, for sure, but you are so fortunate to have some very compassionate friends and businesses to help you in this lifelong battle! I hope you know you can count on me as one of those friends. Please know that you can contact me if you need a shoulder or an ear, though it sounds like you have plenty of gracious well-wishers already! I'm in this fight with you!
Your sister of the moon,
Debby Livingston-Jones

singerkt | 2:26 p.m. Nov. 14, 2008

I am grateful to the newspaper for running this article. I think it's important for people to understand others and to have an awareness for rare syndromes. Lizzie is my sister and it's great to have articles out here so others can understand her better. Many thanks to those who are helping my family with this hard thing.

Brad | 2:31 p.m. Nov. 14, 2008

Thanks to Alpine Tinting and Rocky Mountain. If I didn't have 4 kids and lots of debt I could help out my sister more. Love you Liz.

Peter G. | 7:30 p.m. Nov. 14, 2008

Volunteers like Jim and Prov Hall from Alpine Custom Window Tinting is what makes the world a BETTER Place..

mary ring | 8:16 p.m. Nov. 14, 2008

I am the sister of the Jim and Prov, who did the window tinting, I have a daughter with
Down syndrome and they know the financial and emotional "burden" I deal with every day, of having a child with a disability. I am so very proud of him for donating his time to help a child and family in need. There should be more people in this world like him.

mary ring | 8:23 p.m. Nov. 14, 2008

hi lizzie/ my name is mary, my brother is Jim who tinted your windows. I hope this helps you so much and when I come there from NY I hope I can meet you, because you are a very special girl. I haven't met you yet but I love already

Jim & Prov Hall | 9:19 p.m. Nov. 14, 2008

We were happy to help the Tenney family now Lizzie can be anywhere in her home without worrying about the sun's UV rays. An added benefit to the family will be a cost savings for cooling and heating.

Kittie | 9:33 a.m. Nov. 15, 2008

WOW! I'm Lizzie's Mom and I am so grateful to Jim and Providence for their generous support! They are amazing! And to Michele for her fantastic efforts for XP. Thanks, Lois for writing this wonderful article. We feel greatly blessed!

Auntie Lou | 10:40 a.m. Nov. 15, 2008

How grateful I am for the generosity of the Hall's, the manufacturer of the tinting, and others who may have helped protect Lizzie. But most of all to Lizzie's Mom and Dad who patiently suffered so much in so many ways until this wonderful Dermatologist crossed their path..... Lizzie's had a 24/7 lifetime of itching, irritable skin with no relief or escape until now. Blessings upon her for future kindness and relief of pain. Aloha Always, BGAE

Noelle Bennett | 12:43 p.m. Nov. 15, 2008

It does not surprise me that the Halls did this to help this family out. They are very giving and caring people and have been my closest friends for years. It's not very often you find people willing to donate there time and material to help out of family but it is certainly nice to know that there are still a few good people out there! Best of luck Lizzie.

Gregg McKay | 6:04 p.m. Nov. 15, 2008

CPFilms Inc. The Manufacture of the LLumar Window Films was glad to a part and help out when Jim Hall called me with the story of Lizzie. I know that this film will make Lizzieï¿½s days more enjoyable.

ADDIE STOWERS | 7:58 p.m. Nov. 15, 2008

WELL I KNOW PROV'S FAMILY VERY WELL AND IT DOESN'T SUPRIISE ME THAT SHE WANTED TO HELP THIS DARLING GIRL. THEY ARE ALL WONDERFUL PEOPE. THANK YOU FOR DOING WHAT YOU DID FOR THIS SWEET FAMILY. YOU ARE GOOD PEOPLE. BLESS YOU LIZZY, I'LL BE THINKING ABOUT YOU, GOD BLESS YOU AND YOUR FAMILY, ADDIE

Pattie | 3:26 p.m. Nov. 17, 2008

I am so proud of Jim and Prov Hall for volunteering and helping this family. They truly make this a better world.

Kitty Tenney | 3:36 p.m. Nov. 17, 2008

My name is Kitty Tenney and I wish you, Kittie Tenney, and your sweet daughter, Lizzie, well. Love lasts the longest in every challege!

Metro Jim | 7:46 p.m. Nov. 28, 2008

What a great company. My fathers company did this for years for familys that had children with this affliction. Camp sun down in NY offers a week long stay over camp too for those with xp and other sun related issues. I have a window film complany here in the chicagoland area and will offer the same help to any local family that deals with XP

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