SALT LAKE CITY — A bill allowing hemp oil extract in Utah for treatment of refractory seizures related to epilepsy is now on its way to the governor's office for consideration.
Bill sponsor Rep. Gage Froerer, R-Hunsville, said the bill would be named in honor of Charlee Nelson, who suffers from Batten Disease. The neurological disorder leads to mental impairment, seizures, loss of bodily control and eventually death.
The 6-year-old from West Jordan visited the House floor with her parents, Catrina and Jeff Nelson.
"The hemp extract that Charlee’s Law allows Utah parents to administer to their children might have helped improve Charlee’s quality of life and prolong her time with her parents, Jeff and Catrina Nelson," Froerer said. "The Legislature dedicates Charlee’s Law to Charlee, her family and all of the sick Utah children searching for a cure."