Vittoria Frandsen died when she was just 8 years old. Despite a congenital heart condition present at birth, her mother said Vittoria "never let the physical challenges hold her back."
"We waited and prayed for a heart while she struggled daily to stay alive," Valeria Frandsen said. "Life has never been the same since then. Our grief and pain has not lifted one bit. She left a void in our hearts and our lives."
Wait time for organs, McDonald said, depends not only on the organ needed, but also the severity of a person's condition and the blood type to determine a match.
Tissue donation, which can come from any circumstance of death, may not be lifesaving, but "it definitely changes lives," McDonald said. Eye, heart, bone, skin, tendon and some vein tissues have the potential to be transplanted and therefore enhance a person's quality of life.
When Anthony Whitaker suffered a brain injury, his mother knew almost immediately that she had lost him. Keri Stephens began contemplating organ donation, and her son's organs, tissue and eyes were able to help save at least five lives and help two people see.
"It's the most positive thing that can come of something so terrible," Stephens said. "Because of donation, I know my son is still alive."
She carries a book with her that contains letters and photographs from the families of those whose lives were saved by the death of her son.
"It is the story of his gift to all these people," Stephens said. "It reminds me there is something more important."
McDonald said people not on the donor registry often have one of several concerns, including that they won't get the best medical care available if they ended up in a hospital.
Emergency room physicians, however, don't have access to information regarding organ donation, he said. At the point of admission to the emergency department, they also wouldn't know who is waiting for what and what blood types might be involved.
"Doctors and nurses have no incentive to let any patient die," McDonald said. "They will do everything they can to save them. Organ donation doesn't even cross their minds until they've exhausted every approach. And it is amazing the things they do, the lifesaving measures they try."
Another common concern involves superstition, that by signing up, something bad will then happen.
"Everyone dies someday," McDonald said, and most people aren't likely to know when that will happen.
Others not on the list, he said, exclude themselves because they think they're not suitable donors because of diabetes, high blood pressure or a previous cancer diagnosis or some other medical issue.
"There's really no medical exclusion except for HIV or full-blown AIDS, or active cancer, with the exception of some cancers," McDonald said.
He stressed that one organ donor can save up to nine lives and have an impact on 50 or 60 lives if tissues are also transplanted.
But with all the effort to sustain life, some awaiting organs ultimately die before receiving them. Haglund's son was just one of many in Utah last year, and she is hoping to spread word of how that impacted her family and his many friends.
"We felt like we had to do something to see some good come out of it," she said. "If we could help prevent some family from having to go through this, it would give him a legacy."
In addition to volunteering with Intermountain Donor Services, Haglund and her family are building the Brock Strong Foundation, which will embark on fundraising events to raise awareness about the importance of organ donation and "honor the life he lived."
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