Benefit concert tonight for genetic-disease survivors

Published: Friday, Nov. 7 2008 12:18 a.m. MST

Singers George Dyer and Jamie Hartley will perform tonight to benefit the Pleasant Grove-based nonprofit United Survivors With Epidermolysis Bullosa (USeb).

The concert begins at 7 p.m. at the Covey Center for the Arts, 425 W. Center, Provo. The cost is $10, although a free silent auction will be held at 6 p.m. before the musical event.

Tickets can be purchased at www.coveycenter.org. All proceeds will go to help children and adults with epidermolysis bullosa, or EB, which is an often-fatal genetic condition that causes skin layers to separate easily, causing severe blisters and open wounds.

People with the disease are at a high risk of infection, malnutrition and cancer. Hartley has the disease and learned to sing in high school when her fingers webbed together and she could no longer play her percussion instrument.

She, her husband and mother founded United Survivors With Epidermolysis Bullosa in 2007 with the goal to improve the quality of life of people suffering as result of the disease. For more information, go to www.ebsurvivors.org.

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