From Deseret News archives:
Parents urge autism incident registry funding
Numerous and often emotional pleas for money to underwrite the state's various early intervention programs for infants born with disabilities and repeated calls to begin an autism incident registry filled most of the time of what is annually the longest committee meeting in a general Legislative session.
Gov. Jon Huntsman Jr. has recommended $14 million in appropriations for Human Services in his 2009 proposed budget. A fraction of those expenditures dominated the three-hour discussion, which was hurried along by a time clock that allowed each speaker 90 seconds to make his point. In particular were pleas for continuing funding to track an autism registry.
There were as many people who wanted to tell lawmakers thanks for money appropriated in past years as those who wanted budgets expanded. At least a dozen couples told lawmakers their autistic children had learned to interact the past year only because they had expert help provided through state funding.
One parent, John Kirton, whose family of six autistic children is profiled in this week's issue of People magazine and who will appear on the ABC's Good Morning America show Wednesday, told lawmakers that despite remarkable progress with autism in the state, the waiting list to get into the Pingree school for autistic children is 300 families long and growing.
A parent of a 12-year-old autistic daughter told lawmakers that having a disabled child is like going through life with a raw egg in your pocket. "You can take care of everything and do all the errands in your life, but you have to be very careful," said Colleen Kenney. "If you do something wrong, life can become very messy in a hurry. If you are able to get some help it's like getting an egg carton."
Since 1980, the number of autism cases has gone up 20 fold. The causes of autism are not known and there is no cure.
Carmen Pingree, the namesake of the school for autistic children, near the University of Utah, told lawmakers that funding for a registry is a critical first step to getting a handle on the number of cases Utah can expect in the next few years.
Recent comments
I have a Downs son, but I have a grandson who may have Asperger's. I...
Mother | Feb. 5, 2008 at 7:52 p.m.
I do Not have any children that are Autistic, but I have two born...
Concerned parent | Feb. 5, 2008 at 9:52 a.m.
I also have an autistic son. Mine was diagnosed only 2 years ago. He...
Malificent | Feb. 5, 2008 at 8:39 a.m.
- Astronauts take spacewalk No. 3 8:26 a.m.
- Stocks climb on home sales report 8:21 a.m.
- 4 U.S. die in Afghan attacks 8:19 a.m.
- 8 women set out to ski to South Pole 8:18 a.m.
- Iraqi lawmakers amend election law 8:08 a.m.
- Schumer: Dems ready to go-it-alone 7:57 a.m.
- Dispute reveals Catholic divide 7:41 a.m.
- Sports on the air 1:21 a.m.
- 2009 MLS Cup recap 12:45 a.m.
- MLS Cup winners, MVPs 12:41 a.m.
- Buttars wants to limit gay rights laws
206 - Glenn Beck to enter politics?
194 - Palin plans tour stop in Utah
178 - RSL wins MLS Cup on penalty kicks
149 - BYU records with win
130 - Palin's book shows she's unqualified
129 - Officer cleared in Cardall Taser case
103 - BYU cuts Women's Research Inst.
101 - Jazz finally win in San Antonio
99 - Utes knock off rival Aggies
93
A little after midnight Wednesday morning, about 21 hours ago as I write...
There's a lot of reason to leave your plastic home as you shop:
Thank you, Mr. Reagan and Mrs. Thatcher for ending the cold war.
From some seats in the ballpark - everything appears to be in right field....
Us Catholics have a problem, the illegal aliens are Catholics and we do not...
The objection is not to their speaking out; it is that they just do not speak...
This is why there should be a playoff.
'...discrimination against anyone is wrong.' - Article. I agree. However,...
The more we learn, the more we find we don't know.
Max Hall is the bigest joke! he can't play if the team is good... utah is...
Oh here we go again! Let's see...a 19 year employee who knows so much about...
Regan was the 2nd worst President just under George W Bush. His trickle down...


