When A Birth Is Also A Death
Angel Watch helps parents celebrate life however brief
And then more words, at once cryptic and heartbreakingly clear: Your baby is not compatible with life.
And so, says Marci Decker, one horrible day last July she and her husband, Gifford, were given a choice. Doctors could induce Marci at 20 weeks, in which case their baby would certainly die, or Marci could continue to carry the baby a little girl, as it turned out knowing that the eventual birth also would be a death.
This is not a story about the pros and cons of terminating a pregnancy. Instead, this is a contemplation about loving what you know you will lose; about accepting that a life in the womb, and with luck maybe a few hours of life outside, is enough.
In the history of childbirth, this is a relatively new phenomenon, this chance to peek into the womb and know beforehand that a baby is in grave peril. So the advent of ultrasound technology eventually also spawned a new field perinatal hospice for families who have received a terminal diagnosis about their unborn baby and have decided to proceed with the pregnancy in spite of it.
Eight years ago, bereavement specialist Kay Tanner and pediatric nurse Carolyn Kasteler, who were both then working for Utah Heritage Hospice, started a program they called Angel Watch. There was nothing else like it for Utah parents facing such a situation, and at the time there were at most a handful of similar programs nationwide.
Tanner and Kasteler created a brochure, sent it to area obstetricians and hospitals, and then waited for their first phone call, aware that there are at least 75 cases of lethal fetal anomalies every year in Utah. Nearly a year later, they were still waiting. If someone doesn't contact us soon, Kasteler told Tanner, maybe we'll just close up shop. And then, one day not long after that, there was a call from a woman whose unborn baby was growing without a skull, a condition known as acrania.
So they drove to her house, Kasteler recalls, and then they sat in the driveway and looked at each other, wondering what they were actually going to say when they got inside. "Then we said a little prayer. And we realized she doesn't know that we don't know what to say." Besides, adds Tanner, the real task at hand was to listen.
Since then, the women have worked with more than 100 pregnancies, and in 2006 Angel Watch became a pilot program of Intermountain Healthcare. Through their work, Tanner and Kasteler support a couple's decision, whether it's to terminate the pregnancy or to proceed, offering permission to grieve. If the couple chooses to continue the pregnancy, the women also offer permission for the parents to engage with their unborn babies.
Recent comments
I am writing a paper on Perinatal Hospice in school. I have read most...
Carlie | Sept. 3, 2008 at 3:38 p.m.
My daughter had Hypoplastic Left Heart Syndrome and other...
Stone-Ehrhardt | May 6, 2008 at 12:54 a.m.
i hope you guys feel better i know that my brohter girlfriend has had...
ashey torres | March 10, 2008 at 1:48 p.m.
- 101 Ideas: Good ways to use red 9:26 a.m.
- Floors are a key in a stylish room 9:25 a.m.
- Is your child a spoiled brat? 9:09 a.m.
- Phelps has sore neck, drops out 9:07 a.m.
- Dems break ranks on health care 9:07 a.m.
- Clooney: I'll film in Italy quake area 9:06 a.m.
- Tips on raising well-adjusted kids 9:04 a.m.
- Bengals sign former BYU fullback 8:59 a.m.
- Pedro negotiating with the Phillies 8:59 a.m.
- AP: AIG consults administration 8:33 a.m.
- Rumor has Boozer with Bulls
- Stadium of Fire flag burning was fake
- Jazz in back of line for free agents
- Okur signs two-year extension
- A primer for the 6th Potter film
- Restaurant destroyed by fire
- Jazz won't meet Lopez on Europe trip
- Mall owner seeks to retain zoning
- Jazz rally for OT win at Orlando
- AK will not play for Russia this summer
- Bronco collecting a galaxy of recruits
140 - Letters: Palin mistreated
137 - Teachers struggle with district cuts
134 - Blazers may offer Millsap a contract
123 - Rumor has Boozer with Bulls
96 - Fairness of BCS debated
81 - Moon landing: Let's hear from you
77 - Chaffetz eyes challenging Bennett
73 - Services bids farewell to Jackson
70 - Letters: Time for a revolution
69
As more and more dads are put out of work in this economy, I've been...
In the end it was Michael Jackson, the father, who left me with a...
It's time to get past the notion that if you don't let your tax dollars go...
Personally I have never seen moths battling, but beer-moths are a different...
What a great article. Articulate and to the point. Global warming is indeed a...
Idol worship.
Redshirt: "with washington controlling the healthcare ..." As I understand...
I cant wait till they make the post final film. "Harry Potter and the...
1. If you want Thomas you can get him for Harp's contract. 2. Boozer is...
This is hilarious, so many of the same people that talk about defense is what...
So Neocons, you want to RISE UP and CHANGE the government. Easy to say. So...
To imply that religion is not evidence because you have apparently failed to...



