From Deseret News archives:
Parents urge autism incident registry funding
Numerous and often emotional pleas for money to underwrite the state's various early intervention programs for infants born with disabilities and repeated calls to begin an autism incident registry filled most of the time of what is annually the longest committee meeting in a general Legislative session.
Gov. Jon Huntsman Jr. has recommended $14 million in appropriations for Human Services in his 2009 proposed budget. A fraction of those expenditures dominated the three-hour discussion, which was hurried along by a time clock that allowed each speaker 90 seconds to make his point. In particular were pleas for continuing funding to track an autism registry.
There were as many people who wanted to tell lawmakers thanks for money appropriated in past years as those who wanted budgets expanded. At least a dozen couples told lawmakers their autistic children had learned to interact the past year only because they had expert help provided through state funding.
One parent, John Kirton, whose family of six autistic children is profiled in this week's issue of People magazine and who will appear on the ABC's Good Morning America show Wednesday, told lawmakers that despite remarkable progress with autism in the state, the waiting list to get into the Pingree school for autistic children is 300 families long and growing.
A parent of a 12-year-old autistic daughter told lawmakers that having a disabled child is like going through life with a raw egg in your pocket. "You can take care of everything and do all the errands in your life, but you have to be very careful," said Colleen Kenney. "If you do something wrong, life can become very messy in a hurry. If you are able to get some help it's like getting an egg carton."
Since 1980, the number of autism cases has gone up 20 fold. The causes of autism are not known and there is no cure.
Carmen Pingree, the namesake of the school for autistic children, near the University of Utah, told lawmakers that funding for a registry is a critical first step to getting a handle on the number of cases Utah can expect in the next few years.
Recent comments
I have a Downs son, but I have a grandson who may have Asperger's. I...
Mother | Feb. 5, 2008 at 7:52 p.m.
I do Not have any children that are Autistic, but I have two born...
Concerned parent | Feb. 5, 2008 at 9:52 a.m.
I also have an autistic son. Mine was diagnosed only 2 years ago. He...
Malificent | Feb. 5, 2008 at 8:39 a.m.
- Sports briefs 9:51 p.m.
- Teen girl killed in Kaysville crash 9:48 p.m.
- Gallery: Holidays with the Herberts 9:28 p.m.
- Patrolman kills suspect in slayings 9:24 p.m.
- No resolution for fire station neighbors 9:18 p.m.
- Witness: Mitchell wanted attention 9:17 p.m.
- UNLV earns ranking before BYU 9:11 p.m.
- Utes prepare to go bowling 9:08 p.m.
- 'Mr. Hyphen' takes aim at stereotypes 9:07 p.m.
- Studies: Gambling addiction is illness 9:06 p.m.
- 2 citations issued at Y.-U. game
- BYU says Hall incident resolved
- Max Hall: a fixture in rivalry lore
- 'Grandfamilies' a growing trend
- Witness: Mitchell wanted attention
- Mitchell called intelligent, controlling
- MWC '09 season in review
- Jazz win 6th in 7 games
- Jazz ready to be without Harpring
- Daughter: Mitchell fed me my pet
- Hall mouths off about hate of Utah
903 - Cougars beat Utes in overtime
482 - Hall reprimanded by MWC
401 - Max Hall issues apology
387 - Hall's pain reflects self-betrayal
344 - Utes won't respond to Hall
275 - BYU says Hall incident resolved
236 - 2 citations issued at Y.-U. game
158 - BYU is champion of the state
143 - Religion in politics is tiresome
128
My husband was teaching his 6th-grade class in Salt Lake last year when...
If the Oly v. Skyline game was a fluke, how do you explain Oly doubling your...
"This problem is a lot worse that what we believed in the beginning.." Sound...
Hey back off cowboy he has a right to say what he feels this a jazz fan blog....
I wasn't doggin clemens and eaton. I was just curious who the girls are and...
Keith will make a great judge. He is bright and articulate and has the right...
Joe is my hero. We could only hope to replicate him in other locales.
I too, am an out of state transplant. I have never heard so many people who...
What a loss for Utah. Judge Bench has quietly and effectively serve Utah in...
Tell me the last time ANY NBA player was injured diving on the floor for a...
Max apologized and thats really all he can do, he cant take back the words he...

