From Deseret News archives:
Parents urge autism incident registry funding
Numerous and often emotional pleas for money to underwrite the state's various early intervention programs for infants born with disabilities and repeated calls to begin an autism incident registry filled most of the time of what is annually the longest committee meeting in a general Legislative session.
Gov. Jon Huntsman Jr. has recommended $14 million in appropriations for Human Services in his 2009 proposed budget. A fraction of those expenditures dominated the three-hour discussion, which was hurried along by a time clock that allowed each speaker 90 seconds to make his point. In particular were pleas for continuing funding to track an autism registry.
There were as many people who wanted to tell lawmakers thanks for money appropriated in past years as those who wanted budgets expanded. At least a dozen couples told lawmakers their autistic children had learned to interact the past year only because they had expert help provided through state funding.
One parent, John Kirton, whose family of six autistic children is profiled in this week's issue of People magazine and who will appear on the ABC's Good Morning America show Wednesday, told lawmakers that despite remarkable progress with autism in the state, the waiting list to get into the Pingree school for autistic children is 300 families long and growing.
A parent of a 12-year-old autistic daughter told lawmakers that having a disabled child is like going through life with a raw egg in your pocket. "You can take care of everything and do all the errands in your life, but you have to be very careful," said Colleen Kenney. "If you do something wrong, life can become very messy in a hurry. If you are able to get some help it's like getting an egg carton."
Since 1980, the number of autism cases has gone up 20 fold. The causes of autism are not known and there is no cure.
Carmen Pingree, the namesake of the school for autistic children, near the University of Utah, told lawmakers that funding for a registry is a critical first step to getting a handle on the number of cases Utah can expect in the next few years.
Recent comments
I have a Downs son, but I have a grandson who may have Asperger's. I...
Mother | Feb. 5, 2008 at 7:52 p.m.
I do Not have any children that are Autistic, but I have two born...
Concerned parent | Feb. 5, 2008 at 9:52 a.m.
I also have an autistic son. Mine was diagnosed only 2 years ago. He...
Malificent | Feb. 5, 2008 at 8:39 a.m.
- Nets lose again 10:12 p.m.
- License office to open Fridays 10:10 p.m.
- Sports briefs 10:10 p.m.
- Giant carp could reach Great Lakes 10:08 p.m.
- Kids talk to astronaut in space 10:07 p.m.
- Ban on foreign waste gets OK 10:04 p.m.
- Classmates mourn crash victim 10:03 p.m.
- Wisconsin beats No. 6 Duke 10:03 p.m.
- New details in Roy double slaying 10:02 p.m.
- BYU prof a 'Top Global Thinker' 10:01 p.m.
- Why is Y. ignoring spew of hatred?
- Unbeaten BYU takes trip to Logan
- Mitchell said to share LeBaron traits
- BCS just keeps dirty laundry on spin
- Teen girl killed in Kaysville crash
- Utahns growing tired of Bennett
- 2 citations issued at Y.-U. game
- Orem pair getting a rep for crime
- MWC awaits bowl destinations
- Simple candies for the holidays
- Hall mouths off about hate of Utah
913 - Cougars beat Utes in overtime
483 - Hall reprimanded by MWC
405 - Max Hall issues apology
391 - Hall's pain reflects self-betrayal
358 - Utes won't respond to Hall
277 - BYU says Hall incident resolved
244 - Why is Y. ignoring spew of hatred?
234 - 2 citations issued at Y.-U. game
177 - Religion in politics is tiresome
154
First, a big thank you to all who posted questions here for me to ask...
As the TV cameras Tuesday night scanned the West Point audience during...
LDS Church publisher Deseret Book has some specials for the holidays.
BYU will finish 3rd or 4th in the conference. Evidence: Tonight. Case...
All of you nay sayers don't know anything about basketball. What other coach...
story getting old... | 4:29 p.m. Dec. 2, 2009 This thing about Max is...
@what:"fold to Weber" Utah played pretty good ball we beat them on their...
I agree on Rich and Piute, but idk about Panguitch, remember they lost to...
Great win Aggies. I was worried the first half. There's no need to fear...
Anae shut Max down more than the U defense...but we'll take the 3pt win...
The Spectrum..... THE BEST FANS IN THE WORLD!!!!!
Congratulations to the Miller family for re-signing Coach Sloan. I've been a...
the threat yrs ago was someones bag they left and had his alarm colock in it...



