From Deseret News archives:
Lemonade sales to honor a young victim of cancer
Tuesday, his friends are running a lemonade stand to celebrate what would have been his eighth birthday, the proceeds to benefit pediatric cancer research.
Children from Uintah Elementary are setting up their lemonade stand in Liberty Heights Fresh, a specialty food store at 1100 East and 1300 South, after school, from 3:30 to 5:30 p.m. Besides the lemonade stand money (suggested donation: $1), one-tenth of the day's total proceeds will go to the research fund. And the children will get to have some birthday cake with Simon's parents, Mary Craig and Markus Vodosek, and Simon's little sister Miriam.
Simon was only 4 1/2 when he was diagnosed in December 2001. He'd had a stiff neck and was limping quite a bit. At first doctors thought it was a femur not developing well. Then they suspected leukemia. Ultimately, he was diagnosed with a metastatic neuroblastoma in his bone marrow, from a tumor located off his spinal column near his left adrenal gland.
Nothing ever seemed to work. But he was still doing quite well, his mother said. He made it to half his kindergarten year and attended school 120 out of 180 first-grade days.
He was jealous of a friend who had perfect attendance; he really loved school. His mom went with him to school a couple of times to draw blood as a demonstration for his classmates, but he was a little private about his health.
She died just five days before Simon, but her lemonade stand has been adopted as a fund-raiser across the nation for pediatric cancer research.
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