MS spokesman finds humor the best medicine
'Squiggy' spent 15 years trying to hide his disease
He chose to pretend he didn't have the degenerative neuromuscular disorder because of what the doctor said when he gave a name to the numbness in Lander's hands and feet, the falling down, the increasing difficulty walking: Your eyes will go, he remembers being told. Your memory will be shot eventually. And you'll end up using a wheelchair. You'll have bladder problems. And there are no real treatments. He was told to avoid hot baths and showers, to stay out of warm climates.
"He was telling me to cut myself off. 'If this is what his attitude is and if this is MS and what people think of it, don't tell them,' " he decided.
So the actor claimed he had a back problem that would heal.
But times change, and that's part of the message Lander offers in his very humorous book, "Fall Down Laughing: How Squiggy Caught Multiple Sclerosis and Didn't Tell Nobody."
Lander has changed, too. Now he's a national MS spokesman, visiting about 30 cities a year on behalf of the National Multiple Sclerosis Society. He spoke Saturday at Jordan Commons, a visit sponsored by MS ActiveSource.
First, the disease changed his social life. Then it changed his career. He started using a stunt double whenever he got a role in some detective show. He claimed a car accident ruptured a disk.
Five years ago, Penny Marshall told him that the Dinner of Champions was looking for someone to honor and would like to honor him.
It was basically the right time to admit the diagnosis, he said.
"I was sick of having the disease and wondering who I had told and did he tell anyone?" Lander said. Ironically, "stress will cause an exacerbation and what the heck does hiding it do?"
He talked to a big shot in the industry who was interested in raising money for MS. If I came out, he asked, would you hire me? And, in fact, that man has continued to see that Lander has had enough acting work to pay for his health insurance. But he gets discouraged because the parts are never the meaty ones he wants. "Acting is all about confidence and a lot of MS is losing confidence," he told the Deseret Morning News. The roles he now gets don't test his confidence at all. They're not as challenging as he'd like.
Physically, though, the doctor's words were more bleak than the reality he has carved for himself. Three times a week, Lander does physical therapy. He takes a drug that was unheard when he was diagnosed, Avonex, once a week. For a while he had taken another medication by shot three times a week. Avonex works better for him.
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